First, I want to say how grateful Greta and I are for all of the support and visitors that we have received on this blog. We are getting comments from people we haven't even met, and that is very cool. It is the highlight of our evening to come home and read all of the comments. The blog has been a really great tool for keeping everyone informed and it has spared us both the exhaustion of having to repeat our story over and over.
So, today was another relatively uneventful 24 hours, which is good. We were told today that Niklas's PIE (lung condition) is showing some small signs of improvement. This one may take a little time to clear up. He also had another brain scan today and after our conversation with the doctor I am feeling much better about this. There was no further bleeding in Niklas's brain which is good. On the other hand, the ventricles in his brain have enlarged a little bit more (1mm). In a nutshell, here is what is happening. The brain produces cerebral fluid all of the time which washes over the brain and is recycled. Niklas had small bleed in the beginning that was pretty low grade and not too much of a concern. Commonly, when these bleeds heal, the clots can restrict the draining of the fluid that is produced and this causes the ventricles to expand. In the case of Niklas, this blockage is very small, evidenced by the slow rate of expansion. He has another scan on Monday and they are hoping that things either stay the same or start clearing up. Nonetheless, since this is not a rapid collection of fluid, there is no need to get alarmed yet. If the ventricles continue their expansion, they will drain the fluid from his lower back until the clot heals up. At this point I am very relieved about the results of this scan and feel pretty good that Niklas is going to get past this one just fine.
Also, Gabbie and I had a real moment today. I was doing Kangaroo Care with her when she started moving, strecthing, and wiggling around until she could turn her head and look at me. She had her eyes wide open for about 20 minutes and we both just stared at each other. Her eyes were so big and beautiful, and she was so alert. I wish Greta had been in the room to take a picture. Soon after, she snuggled in and went to sleep again. Both Lukas and Gabbie are making good strides with their time on Nasal Cannula and both did well with feedings today. I still can't help but feel like we are still on a rollercoaster, I just hope we have gone over the biggest of the hills. Oh, and last night, all 3 kids were blessed by one of the hostpital's chaplains. She was also amazed by the sight of these three little miracles.